Self-Advocacy and Care Transition Readiness Among Adolescents With Chronic and End-Stage Kidney Diseases

Document Type : Original Article

Authors

Lecturer of Pediatric Nursing, Faculty of Nursing, Zagazig University, Egypt.

Abstract

Background: Assessing self-advocacy and transition readiness is an integral part of any transition plan for adolescents with chronic conditions to ensure a successful transition to adult healthcare and positive health outcomes. In adolescents with chronic and end-stage kidney diseases, this assessment is of exceptional importance because of the complexity of the treatment and care process. Purpose: To assess self-advocacy skills and care transition readiness among adolescents with chronic and end-stage kidney diseases. Design: A descriptive study was conducted on 105 adolescents with chronic and end-stage kidney diseases at the hemodialysis unit and nephrology outpatient clinic in the pediatric university hospital (Zagazig University Hospitals). Instruments; An interview questionnaire, the patient self-advocacy scale, and the transition readiness assessment questionnaire. Results: It was found that more than two-thirds of the studied adolescents with chronic and end-stage kidney diseases had low total self-advocacy skills and nearly three-fifths of them had low readiness for transition from pediatric to adult health care. A highly statistically significant positive correlation was found between total self-advocacy skills and total transition readiness of the studied adolescents. Conclusions: Adolescents with chronic and end-stage kidney diseases had low self-advocacy skills and low readiness for transition from pediatric to adult healthcare. Moreover, self-advocacy skills and transition readiness were positively correlated. Recommendations: Comprehensive transition programs with structured transition planning, transition education, support, family involvement, and regular assessments to evaluate readiness and adjust the plan as needed should be implemented.

Keywords

Menoufia Nursing Journal
Volume 9, Issue 4
October 2024
Pages 43-65

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